Khairy wants National Clinical Autism Registry to collect data on cases
A National Autism Council is set to be formed to streamline education, treatment and post-diagnosis care for those afflicted with the neurological and developmental disorder.
Health Minister Khairy Jamaluddin said council members will comprise representatives of non-governmental organisations, parents and patient advocates.
“We hope to get the council ready by end of the year. The council and all concerned parties can band together and form a network that provides better information sharing among various agencies and governing bodies in Malaysia,” he said.
Speaking at a media conference in Kuala Lumpur, Khairy said the ministry wanted a National Clinical Autism Registry to collect data on cases so they can have holistic information that can help the ministry to do better intervention work.
The council will also look into all aspects concerning autism like insurance coverage and it will be guided by Bank Negara Malaysia (BNM) on this matter.
He said he would bring this recommendation to the Cabinet and wants the council to be a focal point that brings together shareholders that are able to craft evidence-based intervention to better support and serve individuals on the autism spectrum.
“The council will provide support for parents and also make sure we support those with autism from the time they are young till they are adults. This is a key point.
“As for insurance coverages, we are guided by BNM and we will call them for their opinion and support on how to move forward,” he added.